"Sometimes, it just stops me from doing anything”: A qualitative exploration of epilepsy management in people with intellectual disabilities and their carers

Mengoni, Silvana, Gates, Robert, Parkes, Georgina, Wellsted, David, Barton, Garry, Ring, Howard, Khoo, Mary Ellen, Monji-Patel, Deela, Friedli, Karin, Zia, Asif and Durand, Marie-Anne (2016) "Sometimes, it just stops me from doing anything”: A qualitative exploration of epilepsy management in people with intellectual disabilities and their carers. Epilepsy & Behavior, 64 (Part A). pp. 133-139. ISSN 1525-5069

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Epilepsy affects 1 in 5 people with an intellectual disability (ID), but little is known about their experiences of living with epilepsy. A qualitative study was conducted to investigate the impact and management of epilepsy in people with ID.

Item Type	Article
Additional information	© 2016. This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited. Open Access funded by Department of Health UK. The version of record, Silvana E. Mengoni, et al., '"Sometmes, it just stops me from doing anything": A qualitative exploration of epilepsy management in people with intellectual disabilities and their carers', Epilepsy & Behavior, Vol. 64, Part A, November 2016, pp. 133-139, first published online 11 October 2016, is available at doi: http://dx.doi.org/10.1016/j.yebeh.2016.09.029 Published by Elsevier.
Keywords	epilepsy, intellectual disabilities, self-management, qualitative study
Date Deposited	15 May 2025 13:11
Last Modified	15 May 2025 13:11

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